My Baby.

My Baby.

Friday, 6 June 2014

Formula?

     So now that I'm not so new to the PKU world I've been researching different types of formula since my daughter will have to drink it every day for the rest of her life (hopefully at least, my goal is to teach her how important being on her diet is). What I've found is really quite discouraging! Just looking at the back of a leading PKU formula and reading the ingredients makes my head hurt. The VERY FIRST ingredient on every formula I found is Corn Syrup Solids... Uhhh.... no thanks. It is great that the formula has all the vitamins and minerals she needs for the day, but while I was pregnant I was sick everyday because my body couldn't handle all the things that were in my vitamin at once. So why would I want my daughter's body to have to work even harder just to deal with some of the crap in her formula AND all the things she really needs?

     I haven't found a solution but a few promising leads, and the main reason I'm writing this post is to ask any PKUers or PKU parents if they feel the same way, and what they do. I've found a product from PheylAde, their amino acid blends...
                                             
 A phenylalanine-free, powdered medical food for the dietary management of phenylketonuria (PKU) in toddlers, children and adults, including pregnant women and women of child-bearing age.   
      I haven't done enough research on this product to have a full opinion, but it seems like a much better option than formula to me. I'd have to make sure that MK got her vitamins from foods and supplements at different times of the day, but this seems to be better for her little kidneys when she is a toddler and she'll get all the amino acids that she won't receive on a low-protein diet.

    Anybody want to share their experiences with me or even their opinions? E-mail me at pkumomma@gmail.com please!

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